Everyone needs a place to call home

Although a small group of people overall are actually homeless, many are without a place to call home.

Feeling homeless and being homeless can be the same or it can be quite different.

Everyone , every person, every being ,whether they admit it or not, needs to feel there is a place that is home, that is safe, that is peaceful.

For some this so called home in a garden, or a park or in their physical house. Some find it in a religious or spiritual place or worship. Some find it in a bar and some find it on a website.

Over the past year , I personally have been working with my sister, building a website a place to share and place to learn and a place to find comfort. This website  https://whitebearsworld.com  is still in progress but it main focus is for children and their families that have a rare or chronic disease, to share their stories and learn from one another. A place to share ups and downs and a place to offer new found information(medical)

Also in this past year I have spent a good part of the year in the hospital with my daughter, who has VACTERL Syndrome. Over their year I found it impossible to work and properly care for her, my son and myself. We would physically be homeless if not for the kindness of my family , we are staying at my Dads house while we figure out of next move.

Life is crazy and hectic sometimes and recently I have realized how important being home is.

Having that safe zone. Knowing people care if I am ok.

I wish that for everyone, although running into a very old friend whom was holding a sign looking for help getting food. He is not only emotionally homeless but physically homeless as well.

It broke my heart to see and I felt even worse that I have no way to help.

Please always send kind wishes to others as many many are physically or emotionally homeless.

Hoping as https://whitebearsworld.com, unfolds it will offer some comfort for others fighting rare and chronic disease to feel like they have someone, even a stranger who cares to know they are ok

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Crockpot Steak

I have made a ton of things in my Crockpot over the years. I have never really tried making steak in it though. As I have stated in an earlier post I am in the middle of moving and I am trying to use up all my groceries prior to my move to make life a little easier. Also with moving cooking in my crockpot allows me to take care of other things while still making a decent dinner.

The ingredients I used were simple, easy and tasty!

Sirloin Steak

Black Pepper

Paprika

Adobo

Garlic Powder

1 can of Rotel Tomatoes with Chile Peppers(medium heat)

I turned the crockpot on at noon, I went to work came home at 6 and was the tenderest steak I ever made.

My kids are not big fans of Rice A Roni, but I like it and well I need to finish up the groceries so I make the Beef Flavor to go with the Steak, It was truly delicious and I would surely make again.

I am sure that you could use whatever cut of steak you like but I used what I had, I had originally bought it to make fajitas. But I guess I never got around to that.

Sometimes I forget that I actually enjoy cooking, Now I need to start taking good pictures of these recipes.

When my husband was alive , he used to call  me Master Mix as no matter how little food we had I always found a way to throw it together and come up with a meal. That was a very long time ago and have gotten into the routine of  the What do you want for dinner game? which I actually don’t like at all. I ask my Daughter, I ask my son they will usually disagree on whatever the other on says and I will get mad and make a pot of pasta, he loves meat sauce, she hates the consistency and only wants pasta with meatballs. Kids they are always going to keep it interesting.

Happy Crockpotting!

Hard to believe this is even me…

I have not written in a while. I have kind of been in a funk. I have a lot of emotions running through me and I am not sure where they will go and what I will be able to do to control the events that will follow.

I have always prided myself on taking care of myself. I have believed that somehow someway things will work out. I have believed that at the last moment something will come through and I will figure it out.

I am wrong. I am 3 -1/2 weeks away from actually being homeless. I have never thought that life would bring me here , but well here I am.

I have worked since I was 13 years old. I was never one to sit on my butt and do nothing, I was always the one who went out and found a way. Now it has been several years since I have had a real job, one I could count on , one that could count on me.

My daughter’s health has a lot to do with it. She is complicated at best, and she requires a ton of medical intervention. Appointments, surgeries, medications, treatments and so on. In addition to that she needs to be a normal kid, school, fun, life activities. I also have my teenage son home still in homeschooling, and my oldest who is on her own now.

I have tons of medical issues myself, I have tummy troubles. both knees need replacing, high blood pressure, weight issues and I have been fighting with depression and anxiety my entire adult life. With all these issues and my daughter’s issues finding work has been near impossible. I have tried at home jobs on the phone but they require mandatory times or good internet or other issues that I am not able to accomplish, not at lack of trying though. I have tried cashier jobs as they are more flexible timing, but standing for long periods of time cause my knee pain to be intolerable.

I have managed to maintain my residence, by living off my daughter’s SSI which is under 700 a month and my ex-husband was paying child support, which he did not do for the first 15 years after divorce, recently he found himself in jail and the checks stopped coming about 2 months ago. This has forced me to not be able to pay the bills at all , therefore rendering us homeless. My Dad has agreed to let us stay with him while we figure it all out, so at least we will be safe and loved, but it does not change the fact that it screws with my emotions. I have reached out to every organization only to be turned away each and every time.

I find it crazy that in a situation such as mine there is no help available. Housing has had a closed list for 8 years with no chance of getting in for at least 5 more years, I did not ask for my daughter to have all these health issues, nor did I ask her Dad to die from brain cancer, The only thing I could have done better was save years ago when I was working. I did not know where life would take me and I was under the impression that I would find a way.

I find myself fighting my depression with the help of medication but all I really want to do is climb in my bed and stay there for ever. I don’t, I get up I take care of my kids, I take care of meds and appointments. When my daughter is hospitalized I stay with her and go back and forth and check on my son. I make jokes and entertain her and all the kids like I am alive, like I am happy like I am not the mess I feel inside.

I don’t know what the near future will hold for us, but I do know that somehow someway I will find a way to not let it get the best of me.

And here’s to the future….

After almost 15 years I saw a Physiatrist, I used to see one a long time ago. At the time I suffered from not only depression and anxiety but self worthlessness. That was a long time ago. I have learned a lot about life and a lot about myself in these years. I no longer see myself as worthless, I actually think I am a pretty cool person. I am kind, well mannered(for the most part) and I can hold up my end of most conversations and when I can’t I stay quiet, crack a joke or admit I have no idea what you are all talking about so I am just going to sit back and listen.

I think all that that makes for a little clue as to how I might think, but it does not. It would be improbable to think that someone would be able to delve into my brain and get what is going on in there. It can be a scary place sometimes, mostly just mixed up, hyped up type thought but then there is some dark and depressing,sad and confusing stuff in there also.

Most people think I just go about my days but there are a handful of people who really know me. They know that I fight depression and anxiety and although I give it a good fight now and again it gets the best of me. In the past few years I have learned that no matter how I am feeling, put to the test, I will react and take care of whatever I need to do. If we have appointments, I get to them. If we have bills I figure out a way to pay them, if we have food I cook it, if we don’t I figure out how to get it and so on. So I do fight it, so what does that really mean, nothing on the big swing of things I still need help. I still have days where it is a complete blur and I have no clue how the things got accomplished and sometimes I wonder what exactly I said to all the people I encountered.

Well as it seems, the doctor did not admit me to an institution so that is a good sign. He also did not deny that I have had these issues a long time and even though I fight it on my own, I don’t need to , he is there and he will help to the best of his ability. I need to understand that just because you take a pill it does not lessen the fact that your kid needs to endure one more huge surgery before the summer is out and she really does not want to do it. It does not change the fact that I need to work, yet how can I work. I need to take care of business yet it is stressful not having a clue how. I need to understand just because a take a pill it is not magic it will not take away real life, however it will help, it will make me more evened out and less I can accomplish the world today and tomorrow and then I can’t get off the couch for three days. It may not make it perfect but it will help me to help myself. I believe that is a really good starting point.

I also learned that me talking to people about my issues and what is going on in my mind is a good thing and that seeing a counselor will help me work out some of the emotions I have and if anything give me a good sounding board. I need that.

I have so many stories I would like to share. So many things I would like to talk about , but then people would know, then people judge, then people would look at me and have something say about things that are past tense and even if you would have done differently, I am not supernatural and I can’t go back and change events, it is simply not an option. Although that would be kind of cool. I watch  a lot of Supernatural and Charmed and the different powers are all kind of awesome, but I know better….

So I will try out some new medication, hope it works, hope I don’t break out in hives like the others in the past, and hope to be able to see my future in the bright way I would truly like to see it…

Kashmir…..

Shared from Youtube, if I need to state that to be on the up and up and all that.

So there are some days where no matter what your mind is a blur and you just need to escape it somehow.

Just got home from pre-op with my 12 year old. She is going in to have her scoliosis corrected. They will be putting in titanium rods and fusing a good part of her spine after they straighten out her ribcage.

I have known about this surgery for a very long time. It was scheduled for 6 months ago but she was not healthy enough to proceed at that time. She had her native kidney get infected and months of antibiotics that eventually led to surgery.

Anyhow after this day, I still had to meet up with her teacher and have a little school. See hospital homebound is a great program with little funding. If students miss days they lose funding, when a child misses on certain weeks it makes bigger impacts and this was one of those weeks. So we rushed to get in a little school and just now it’s 5 in the evening and I am quite thankful I threw dinner in the crockpot this morning.

I have several things I should be doing right now but quite frankly I am in my room, with my door shut and the music blasting as loud as my half broken sound system will go.

When my mind gets this stressy as I call it there are a few things I can do and one of the first ones is always blasting something that will bring me to a different time, a different place a mindset that was free and simple, no real responsibilities, no real people actually counting on me for anything.

The time and place right now in my mind is a much simple fun time, back of Lorenzo’s alley way on 249th and Union, hanging out sipping beers and blasting music, my first introduction to teenage life, my now I am old enough and cool enough to stand in a street alley, freezing my butt off killing myself with smoking and drinking and thinking there is nothing better than this. My life free and simple.

Blasting music from this time of my life is so easy for me, so familiar and yet so so far away. 25 years since I lived in NY 25 years since I really had friends, people to hang around with people who believed in me and trusted me. My childhood, teen neighborhood friends, school friends and all that.

In the years since, I have been married twice have 3 children and have surely had my ups and downs over these years .I would not trade them for anything as I love my children more than I could ever imagine an emotion even existed for, but today I just want to hide blast some Zeppelin or the Ramones and ignore the real life that exists on the other side of my door.

 

Well it’s about time, Lisa….

About 1-1/2 years ago I wrote an article about Steroid Psychosis. This is probably the most personal experience I have ever shared here.

Here is a link to it if you would like to read:

https://lisabarriera.wordpress.com/2015/08/16/steroid-psychosis-a-personal-experience/

Time has past since I wrote this article. Just now I am finally making my doctor appointments and looking into helping myself. I have been seeing my Ortho for a long time because of my knees. I have been seeing primary because my Blood Pressure and I have now started seeing Rheumatology  due to the my joint pain and my primary saw something in my blood work that thought needed more attention.

What I did not deal with was my mental. My emotional status. My ability to look at the past of my life and love what was great and let go of what was not. I have made great strides in some areas and horrible in others. I have not been able to force myself to diet, to stay on an exercise routine. Some days I do great and I make efforts and others I can barely just take care of my kids and that is the best I can do.

I listen to other people, they tell me their problems. I hear them, I feel for them and I look at how much is stuff they could have controlled had they really been paying attention. I know for myself, I have let certain things happen. I could have stopped them but it would have changed everything and I was too afraid of the change, did not want to be the butt of more bad decisions, therefore hearing how all my decisions are bad somehow or another really screws with my self esteem.

When I read about that last year of my husbands life, and I read how I was feeling when I wrote that article it makes me feel those emotions all over again.I woke up yesterday, totally disturbed. My mind would not turn off. I was distraught at something that was said about me a long time ago and I thought I put it to smash, yet clearly it is still an open topic of discussion by people who have done nothing but lie and been lied to. Not by me I just went along with it. My husband said it is none of their business(meaning anyone) and he would not tell the truth about things that honestly there was no reason to lie about. Simple things like his brother inviting him over and him saying oh I can’t go because we have to do this or that, when in all reality we just had no gas in the car. He would tell his family that he had money from this or that, rather than no my wife pawned her ring so we could pay the light and buy this birthday present for you. Or even better They gave it to me. Who was they ?(no-one) why would they just give it to you. But funny they never questioned this. He said it, surely it must be true, although they are always the type that even if they do something nice to you they would say don’t tell anyone, I did this.

See if you are always lying, chances are you will believe others are lying too.

I have nothing to lie about. I tell the truth in my writing. I share information that is not anyone’s business yet I feel like sharing it and I do. I don’t deny that my father taught me the value of money, he taught me to invest and all kind of smart things. I heard him but clearly I was not listening. I have managed to be in my 40’s. Not a dime in the bank or anywhere else. No 401K no savings, no retirement plan, and to top it off just about no income. I was taught better, I just did not learn. When my daughter(my youngest) came into this world as sick as she did , I had no idea what the future would hold, and quite honestly income, and savings and money was rarely a thought, only to get through the month with bills and keep the kids happy- or happyish. We did our best. I worked full time he stayed with the kids. With the little one having a million appointments and all it truly worked out of the best. When I lost my full time job everything went hectic for a bit but we figured it out. I got a part time job, he found some apartments to manage part time and we made do. When he passed, all those appointments became mine. My daughter got listed on the transplant list and well if you read some of my other posts you can pretty much see where we are at now.

Finally I have made an appointment with a psychiatrist.

This appointment is way past due as I should not still be so upset about the comments being made. I should still not wake up and see my husband trying to choke me. I should not sleep three hours a night and then struggle for the next 6 with my brain and any combination of emotions until I finally knock back out due to exhaustion, unless we have an appointment and there I will be up again for the day only making the sleepless pattern continue.

I am going to find a way to live with all this pent up emotion. Figure out is it anger, is it depression and anxiety, is it fear that I loved someone so much that seeing him go crazy made me go crazy?I don’t have a clue, could it be everything I see with my daughter. Could it simply be lack of support or what I don’t know but in about 6 more weeks I will be able to start working on that. Good thing I am not suicidal as long as the appointments take to get but what can you do at least with my lack of income , I am getting medical help.

Don’t wait this long , it is to overwhelming.