Adding a few more worries!

This week is moving week. I have been packing for days and although I am almost done, there is still plenty of work to do.

I have not been looking forward to this move as I am putting my stuff in storage and staying with my Dad. After 25 years of living on my own, I am kind of sad that I have to pack it in a move home. I have been stressed about it, but have recently decided to look at it another way.

I have decided to see the good in it. I will be able to start saving some money, I will be able to not have to worry about lack of money and I will get to spend a ton of time with my Dad. I will get to live in a very nice area of town and I will be safe and loved. (of course so will my kids)

I always felt like I did not want to burden him. I know it will be an adjustment but in the long run it is short term and I jumping from one bad rental to another bad rental is just becoming silly at this point. I do have some concerns that my dog will be a nuisance to his dog as mine is much younger and a lot more energetic. Maybe it will all surprise me and they will become buddies, I hope at least.

I have not been able to work much the past few years, due to my daughter’s chronic illness and needs and my own medical needs. My knees are shot and my anxiety and depression were taking over full force. I have since started on a new medication and it is helping me to be more focused on what is important in my life. My family. My Health, their health and so on.

My daughter’s health has been a challenge to balance since the day she was born just about 13 years ago. She has Vater Syndrome(VACTERL Syndrome) Chronic Kidney disease and a whole bunch of other health concerns.

She is currently about 1-1/2 years post Kidney Transplant. She has had a lot of challenges in the past year or so but so far her Kidney seems pretty happy. She has some  virus issues that come and go and a constant battle with urine infections due to her lack of a bladder. At the end of next month we see Urology and they will make plans for surgical intervention to try to help with these constant infections. The procedure is called a Mitrofanoff and it is a long and complicated surgery at the time they will create a bladder for her and make a passageway using her appendix to allow for proper urination. It is big, she hates thinking or talking about it but it is truly starting to become an issue that is is not done already.

Yesterday was her monthly lab day. Although she was just discharged from the hospital last week and is just now finishing her round of antibiotics it seems something else is brewing. Her labs are off, her numbers are heading in the wrong direction and she is looking at another possible admission on Friday when she goes back to have a minor procedure(stent change) and repeat labs.

We are moving on Saturday so this could not come at a more complicated time, but hey that is what we do, complicated. I feel so sad thinking that the kidney could truly be acting up, but the doc said no panicking, it is not time to panic. It is time to watch for things and time to take care of the urological issues.

I would hate to think she could go through all this and potentially lose the kidney anyway. My poor little girl should simply be getting ready to celebrate her big 13th birthday. She should be ready to finish up school for year and enjoy staying at Grandpa’s where she can actually use the community pool as it is very clean and very well supervised.

Well I guess my worry hat is on this morning, but since she is in school , luckily she is not paying any attention to me. Hopefully today will be busy and distracting so we won’t be thinking about it much and hopefully I will close my eyes and my kitchen will pack itself. Yeah, I doubt that will happen but wishful thinking. As a Charmed fan, I wish I had that powers to move crap by just saying the name of the items like Paige does.. Yes I watch way too much TV!!

Hard to believe this is even me…

I have not written in a while. I have kind of been in a funk. I have a lot of emotions running through me and I am not sure where they will go and what I will be able to do to control the events that will follow.

I have always prided myself on taking care of myself. I have believed that somehow someway things will work out. I have believed that at the last moment something will come through and I will figure it out.

I am wrong. I am 3 -1/2 weeks away from actually being homeless. I have never thought that life would bring me here , but well here I am.

I have worked since I was 13 years old. I was never one to sit on my butt and do nothing, I was always the one who went out and found a way. Now it has been several years since I have had a real job, one I could count on , one that could count on me.

My daughter’s health has a lot to do with it. She is complicated at best, and she requires a ton of medical intervention. Appointments, surgeries, medications, treatments and so on. In addition to that she needs to be a normal kid, school, fun, life activities. I also have my teenage son home still in homeschooling, and my oldest who is on her own now.

I have tons of medical issues myself, I have tummy troubles. both knees need replacing, high blood pressure, weight issues and I have been fighting with depression and anxiety my entire adult life. With all these issues and my daughter’s issues finding work has been near impossible. I have tried at home jobs on the phone but they require mandatory times or good internet or other issues that I am not able to accomplish, not at lack of trying though. I have tried cashier jobs as they are more flexible timing, but standing for long periods of time cause my knee pain to be intolerable.

I have managed to maintain my residence, by living off my daughter’s SSI which is under 700 a month and my ex-husband was paying child support, which he did not do for the first 15 years after divorce, recently he found himself in jail and the checks stopped coming about 2 months ago. This has forced me to not be able to pay the bills at all , therefore rendering us homeless. My Dad has agreed to let us stay with him while we figure it all out, so at least we will be safe and loved, but it does not change the fact that it screws with my emotions. I have reached out to every organization only to be turned away each and every time.

I find it crazy that in a situation such as mine there is no help available. Housing has had a closed list for 8 years with no chance of getting in for at least 5 more years, I did not ask for my daughter to have all these health issues, nor did I ask her Dad to die from brain cancer, The only thing I could have done better was save years ago when I was working. I did not know where life would take me and I was under the impression that I would find a way.

I find myself fighting my depression with the help of medication but all I really want to do is climb in my bed and stay there for ever. I don’t, I get up I take care of my kids, I take care of meds and appointments. When my daughter is hospitalized I stay with her and go back and forth and check on my son. I make jokes and entertain her and all the kids like I am alive, like I am happy like I am not the mess I feel inside.

I don’t know what the near future will hold for us, but I do know that somehow someway I will find a way to not let it get the best of me.